The Nystagmus Network, a UK charity that has been dedicated to supporting individuals and families living with nystagmus for over 40 years, is proud to announce the appointment of Marsha de Cordova MP as its new ambassador. This appointment marks a significant step forward in the charity’s mission to raise awareness and enhance support for individuals living with this complex eye condition.
Marsha de Cordova MP, a former shadow Minister for Disabled People and a person with nystagmus herself, brings a wealth of knowledge and advocacy experience to the Nystagmus Network. Through her role as Chair of the All-Party Parliamentary Group (APPG) on Eye Health and Vision Impairment, she has been a long-standing advocate for equality and inclusion, particularly in areas relating to disability and sight impairment. Her commitment aligns with the charity’s vision to improve the lives of individuals living with nystagmus, a vision condition that affects thousands of people across the UK.
In her role as ambassador, Marsha will work to raise awareness of nystagmus and advocate for better support and understanding within both medical and wider communities through the charity’s ongoing activities. She will also bring added visibility to the charity’s initiatives, including advocacy and raising awareness to deliver resources that can positively impact people living with nystagmus.
Marsha de Cordova expressed her gratitude for the opportunity to become an ambassador for the Nystagmus Network, saying, “I am honored to become an ambassador for the Nystagmus Network and support the fantastic work they do. As someone who lives with nystagmus, I understand first-hand the challenges people with the condition face in everyday life. In this role, I look forward to amplifying the voices of those with nystagmus and working with this fantastic charity to ensure people get the support they need to thrive.”
The Nystagmus Network’s founder and Honorary President, Vivien Jones, also expressed her appreciation for Marsha’s support over the years, stating, “We truly value the support and championing that Marsha has provided over the years. Her role as ambassador will further strengthen the Nystagmus Network’s position as a trusted resource and champion for the nystagmus community.”
The announcement of the ambassadorship was made during the charity’s Ruby Anniversary Reception, sponsored by The Lord Blunkett, where selected guests of the Nystagmus Network were welcomed to the River Room at the House of Lords earlier this month.
The Nystagmus Network also provides vital resources, support, and information for people living with nystagmus and their families, and works tirelessly to promote research and improve public understanding of the condition. Through its mission to champion the cause of the nystagmus community, raise awareness of the condition and its impact, and drive research, the charity seeks to change attitudes, break down barriers, build relationships, and drive progress.
For more information, please contact Sue Ricketts, Nystagmus Network at sue.ricketts@nystagmusnet.org or 01427 718093.
